Contact Form

As you can see the Contact Form is back in.  I have done a couple of tests and all seems to be ok. 

If you still have problems contacting me or I appear to be ignoring you please put a note in comments.

Dave

Contact Form Removal

I have removed the Contact Form from the Blog.  For some reason your messages were not getting to me.  So apologies to anyone I have ignored. 

I will get another version of the contact form back as quickly as possible. In the meantime if you want to get in touch I always read the comments pages.

Cheers for now
Dave

4 days to go and it will be 7 Months!!

Sorry I’ve not updated for a while.  Sometimes life just seems to takeover.  I have recently had my PSA blood test (six months later than it should have been) on Tuesday and got the results yesterday.  The good news is that all is well and my levels are still at zero – PHEW!!!

5 ½ years after my open radical prostatectomy I am on annual checks.  Initially I was told it would be for 5 years however at my 4 year check I was informed that the criteria had changed and the annual checks would now be carried out for 10 years and instead of having them done at the hospital I was to be discharged and have them done via my local General Practitioner.

I don’t know how other people are when it comes to having their checks but for me – it goes way beyond scared!!  I have been very lucky as far as the Prostate Cancer goes.  Mine was caught early and the cancer was contained within my prostate meaning I had surgery and that was it, no radiotherapy or chemo mop-up.  However I am still just as frightened by the annual check as I was initially.  My way of coping was and is to have everything the same for each check, same date and place for the blood test, same place and if possible doctor for the results – you get the idea.  This time, 6 months late, blood test was at the same place, results over the telephone if I wanted otherwise they would only be in touch if there was a problem.  As you might guess – I phoned them!!  I just could not cope with waiting for a phone call that may or may not come.

For some reason within my make-up there is something that on occasion gives me a pretty much uncontrollable fear of cancer and since my diagnosis, illness in general.  When I was growing up in the 60/70’s it seemed to me from what I heard from my parents and others that a person got cancer and they died, simple as that.  My mother especially had the same fear as me, perhaps I inherited that fear, who knows.

Times have changed I know, medical knowledge, techniques and medicine in general has come so far in 40 years (even 5 years and less) that the prognosis for many people has changed and so many people go on to live normal lives.  For me, for some reason within me that knowledge does not stop the irrational fear that I get every time I have my check.

Talking of how far medical expertise has come – back to the main theme of the blog, my implant.

All is well and I am beyond happy with the result, as I have been all along.  While I was leading up to my annual check I really didn’t feel much like inflating twice a day as I had been.  In fact I was leaving it for 3 or 4 days at a time between.  The last couple of days I have been getting back to my normal twice a day inflation/deflation nut I have noticed a slight difference in the max inflation now, which has reduced slightly.  Saying that this morning the pump had more give in it again and I can once again feel the stretch.  Measuring, the girth is pretty much the same at 13cm as it always has been, the length has dropped slightly but only by a couple of mm and as I said I can already feel it stretching back.

Goes to show that I still need to be inflating a couple of times a day to get the maximum that I can in the future.

 

As always any questions please just ask.

All the best for now.

Dave

Chat & Show

I have had a few requests from people who are considering getting an implant ask if I would be willing to chat with them in person and perhaps let them see my implant.  I know from experience that all the pictures and videos in the world are no substitute for reality.  So yes I would!!

Bearing in mind that I am in the UK and that the travelling has to be practical the answer is yes.  If you are considering an implant and would like to chat to me in person, just message me and we can take it from there.

Cheers for now
Dave

Auto Inflation

ANOTHER TOP TIP !!

Just a quick mid-weeker...

I was having problems with auto inflation and the lack of a “pop” making subsequent inflation more difficult.  I mentioned it to my doctor at the last visit a couple of days ago and found that for the last 6 months I had not been deflating properly. 

I had been pushing in the deflate button and as soon as it had stopped “buzzing” I had kept my finger on the deflate button and squeezed to what I thought was fully deflated.  I was then having some auto inflation and lack the of “pop” next time. 

 

Now as per my new instructions I push and hold the deflate button for 10 seconds.  I get the buzzing and it starts to deflate, keeping the button depressed I wait for the 10 seconds (even after the buzz has stopped) then let go of the deflate button, squeeze the shaft and it continues to deflate fully.

 

NO MORE AUTO INFLATION!!

 

Dave

6 Month post surgery Appoinment

Well I had my appointment with the doctor yesterday and you will be pleased to hear that all appears to be going well, I even managed to pick up a few tips.

I had always thought that I had at the time of my surgery the most recent model AMS LGX700 implanted which has among other things a one touch deflate button.  As you will have read previously deflating has never been my strong point and although I have always been able to deflate my implant easily enough I have never managed to do it with one touch and a squeeze!!  Now after all these months I discover I have been doing it wrong.  The correct way is to push the deflate button, wait for the vibration and noise as the fluid leaves the rods, continue to hold the button in for 7-10 seconds, even after the noise has stopped, release the button and squeeze the shaft to fully empty it.  I have now managed that method a couple of times and it is so much easier deflating that way.  It now fully deflates and best of all it stays down.

It would also seem that although the rods have settled towards the back of the shaft (that had been causing me a slight concern) they are in a really good position and best of all there is no sign of erosion or infection – so touch wood (as I now can) <grin>, it’s all good news.

I have to admit the doctor’s inflation at this visit was much firmer than mine, in fact once he had inflated fully I could feel the tips pushing into the head much more than when I inflate (slightly sore for a few minutes though).  Apparently firm but secure squeezing of the bulb is the key and if I continue as I am I should be able to stretch the tissue and in turn the implant further.

Flaccid - I seem to hang at about 5 O’clock.  Erect - laying down it points skyward, standing I am at about 2.30.  I don’t know if that will change over time.  If it does, all well and good, if not I am more than happy with that as an outcome.  The slight upward bend that I had in the shaft is improving and it should continue to do so.  I always assumed that I had in some way caused the bend by injecting incorrectly with Caverject.  That was also wrong apparently the Open Radical Prostate surgery that I had can occasionally cause the shaft to bend. (I will take some pictures for my next post to show the changes).

You learn something new everyday!!!

That’s me up to date and with concerns allayed, I’ll leave till next week…..

All the best

Dave

Practicalities....

After receiving quite a few messages regarding what I can and can’t do since having my implant I thought I would give you a bit of a run down on my experiences.

Bearing in mind that I’m not exactly in the first flush of youth and therefore a game of rugby or football is not on the agenda, nor has it been for a few years – I think if I tried that other bits of my body would give out way before the implant – for me it is more to do with the practicalities and enjoying what I can do.

I had always enjoyed hiking and prior to and after my prostate surgery as well as doing pelvic floor exercises I used walking in an attempt to tone-up my pelvic floor muscles, which in my opinion helped with any incontinence I may have had (I was lucky in that respect, 3 weeks after prostate surgery I was dry) and gave me control. 

Before and since the implant surgery:

I walk/ed daily (couple of miles or so) and time allowing I go for a longer walk/hike of 6-9 miles at some point most weeks.

I swim regularly – although it does depend on the water temperature how comfortable I feel, it’s nothing painful and a warm shower soon gets everything supple again.

I can still use a bike and cycle occasionally.  Cycling was more uncomfortable after the prostate surgery than it ever has been since my implant.

I don’t go to the gym (never did) but in everyday life I can lift and carry weight just as I could prior to the surgery (I did wait quite a few months before I even attempted anything heavy though).

In fact 6 months after my implant I don’t think that there is anything I am unable to do that I did not do prior to surgery.

There are just two things that have changed and neither is to do with exercise:-

1. I always wore loose boxer shorts but since my implant I find it more comfortable to wear the tighter fitting boxers because they give me that bit of support but are not as constricting as briefs, which I found to be too tight and quite uncomfortable.  If you are at that stage try different types and styles, I tried so many before I found comfort but it was well worth the effort.

On a really positive note :- 

2. I did have to change the car from a sporty convertible to a 4x4 J.  Sitting in the bucket seats of the car it felt as if the pump in my scrotum was being pulled upwards and although not painful was a tad uncomfortable, especially during longer journeys.  The upright position of the 4x4 is much more comfortable and before you say it – it’s got nothing to do with “big boy’s toys”!! Much J

As always any comments or questions, just give me a shout via the link on the right.

Cheers for now

Dave